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meet
Jeffrey Randall Allen
WINNER OF
Turning A Father's Hope Into Action
When my son Lucas was diagnosed with Creatine Transporter Deficiency (CTD), our world changed overnight. That moment sparked a relentless mission: to help find treatment for CTD and support every family facing this rare disease.
Understanding CTD
Creatine deficiency impacts the ability to process creatine - essential for brain development and function.
Creatine Transporter Deficiency affects 1 in 200,000 newborns.
Early diagnosis and research are critical for these children's futures.
Turning Challenge into Purpose
Through speaking engagements, advocacy, and tireless dedication to raising awareness, I'm working to create a lasting legacy on Lucas’ behalf-one where CTD kiddos are diagnosed early and receive treatment without delay.
Meet Jeff
Taking Action,
Giving Hope
Your support funds critical research, advocacy, and family support through the Association for Creatine Deficiencies. Every donation brings us closer to a cure. Learn more about the change your donation will fuel here.
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